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Experts Speak Forum: Implementation of the FAIR Principles in Biobanking Needs Fair Incentives.

Publication: Journal Article

Simeon-Dubach, Daniel, Zisis Kozlakidis, Juhi Tayal, Shannon J McCall, Wohaib Hasan, Fay Betsou, Jonathan Lawson, and Dominic Allen. 2024. “Experts Speak Forum: Implementation of the FAIR Principles in Biobanking Needs Fair Incentives.”. Biopreservation and Biobanking 22 (6): 557-62.

Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United States: National Survey.

Publication: Journal Article

Baek, Jinyoung, Jonathan Lawson, and Vasiliki Rahimzadeh. 2024. “Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United States: National Survey.”. JMIR Formative Research 8: e49822.

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Jonathan leads community-driven standards development for technical and ethical standards as co-lead of the Global Alliance for Genomics and Health's (GA4GH) Data Use & Researcher Identity (DURI) Workstream. The GA4GH standards Jonathan leads or has had a significant role in shaping include: The...

Untangling Participant-level Search for Faster and Compliant Data Discovery: A Review of Current and Prospective Policies and Technologies in Data Exploration in the NCPI Program

Publication: Manuscript

Lawson, Jonathan, Emily Hughes, Amanda Charbonneau, and Dave Rogers. Working Paper. “Untangling Participant-Level Search for Faster and Compliant Data Discovery: A Review of Current and Prospective Policies and Technologies in Data Exploration in the NCPI Program.”

A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access.

Publication: Journal Article

Rahimzadeh, Vasiliki, Jinyoung Baek, Jonathan Lawson, and Edward S Dove. 2024. “A Qualitative Interview Study to Determine Barriers and Facilitators of Implementing Automated Decision Support Tools for Genomic Data Access.”. BMC Medical Ethics 25 (1): 51.

When 'More Isn't More': The Normative and Practical Case for Improving Genetic Data Infrastructure.

Publication: Journal Article

Labrecque, Sofia, Jonathan Lawson, Bronwyn Danielle Walsh, and Vasiliki Rahimzadeh. 2025. “When ’More Isn’t More’: The Normative and Practical Case for Improving Genetic Data Infrastructure.”. The American Journal of Bioethics : AJOB 25 (12): 52-55.