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Lauren Bellfy Ph.D.

Person: Postdoctoral Associate

Lauren is a postdoctoral associate in the Pan Group at the Stanley Center for Psychiatric Research. Lauren received her PhD in Molecular, Cellular, and Integrative Biosciences from the Pennsylvania State University under the mentorship of Dr. Janine Kwapis. During her graduate training, Lauren...

Where is all the NIH data? A Landscape Analysis of the 150 NIH Repositories and the Path Beyond the Mountains

Publication: Journal Article

Walsh, Bronwyn, Jonathan Lawson, Sofia Labrecque, and Vasiliki Rahimzadeh. Working Paper. “Where Is All the NIH Data? A Landscape Analysis of the 150 NIH Repositories and the Path Beyond the Mountains”. SSRN, Working Paper.

Untangling Participant-level Search for Faster and Compliant Data Discovery: A Review of Current and Prospective Policies and Technologies in Data Exploration in the NCPI Program

Publication: Manuscript

Lawson, Jonathan, Emily Hughes, Amanda Charbonneau, and Dave Rogers. Working Paper. “Untangling Participant-Level Search for Faster and Compliant Data Discovery: A Review of Current and Prospective Policies and Technologies in Data Exploration in the NCPI Program.”

A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access.

Publication: Journal Article

Rahimzadeh, Vasiliki, Jinyoung Baek, Jonathan Lawson, and Edward S Dove. 2024. “A Qualitative Interview Study to Determine Barriers and Facilitators of Implementing Automated Decision Support Tools for Genomic Data Access.”. BMC Medical Ethics 25 (1): 51.

When 'More Isn't More': The Normative and Practical Case for Improving Genetic Data Infrastructure.

Publication: Journal Article

Labrecque, Sofia, Jonathan Lawson, Bronwyn Danielle Walsh, and Vasiliki Rahimzadeh. 2025. “When ’More Isn’t More’: The Normative and Practical Case for Improving Genetic Data Infrastructure.”. The American Journal of Bioethics : AJOB 25 (12): 52-55.

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Jonathan leads community-driven standards development for technical and ethical standards as co-lead of the Global Alliance for Genomics and Health's (GA4GH) Data Use & Researcher Identity (DURI) Workstream. The GA4GH standards Jonathan leads or has had a significant role in shaping include: The...